I'm not a great patient. I'm really not.
So when my Hubs nervously says to me, "I think you have a brain tumor," I laugh. Hysterically busting a gut in his gorgeous, blue-eyed face.
"A what?!" I shockingly remarked as I lay in bed for the 3rd week straight from what I thought was an ongoing "pressure" headache.
A very long "pressure" headache that happened to a woman who rarely ever had so much as a "regular" headache in her entire life.
I thought my Hubs was talking gibberish. Brain tumor. Hilarious.
How could a healthy 39-year-old woman such as myself have a brain tumor? Preposterous, I say! Do you have a brain tumor, sir?
Looking back, however, I can kind of understand where he was coming from.
Ever since Christmas (which I didn't attend because of this "pressure" headache), I wasn't myself. For the next week or two I was self/or friend diagnosed with either vertigo, sinus congestion, and some other oddities I won't even mention.
I thought I could "tough" my way through it; I'll get better. This is ridiculous, I thought, to still be suffering from some crazy-ass head thing.
It wasn't until I was going into week 3 that I got concerned: I wasn't better; I was fucking worse. Like way worse.
So much more worse.
I couldn't sleep at night and I recall telling my Hubs, "My head hurts so bad I think I'd feel better if I blew my brains out." That's how in pain I was.
The pain got so gnarly I notified my Hubs that we have to go to an Urgent Care pronto. I could barely sleep, all the OTC medicine I was taking wasn't working anymore, the holistic concoctions and potions weren't even touching my pain and any light felt like my eyeballs were being stabbed by tiny daggers.
As I lay on the Urgent Care table, with my eyes closed due to the piercing brightness, I spewed my symptoms to the nurse and doctor.
Eventually, the doctor told me my labs showed I had a UTI.
"A UTI!" I screamed in my head.
You've got to be kidding me. I know my body and this isn't a UTI.
Apparently, I wore that same expression on my face because she quickly responded.
Doc said I'd be shocked at what a UTI can do to the body. I laughed her off and wanted to believe her, but knew something deeper was going on and a UTI wasn't the answer.
We were sent home with a sympathetic look, a prescription for antibiotics, and a "check-up with your doctor, sweetie" send-off.
The days that followed only got more painful; more dreadful.
Four days later—by Thursday afternoon—I began puking.
And that is the last thing I recall.
Let's name this the fade-to-black scene, mmmmkkkay?
The puking scared me, but it also scared the shit out of my Hubs. He had been wanting me to go to the hospital and I stubbornly refused (like I said I'm not a great patient)...over and over and over again.
I was incoherent and unable to make any decisions at that time. The Hubs tried his best to get me hydrated and ready to take me to the ER. At that point, I was no longer able to tell him, "no".
When he called our neighbor to help him heave-hoe me in the car for the ER (I was like a sack of 120-pound potatoes), I began having a seizure.
Our neighbor was there at that moment and told Hubs this just turned into a 911 emergency as he called for help.
The paramedics arrived; I was assessed, stabilized, and then taken to the ER via ambulance.
At the local hospital, they found a brain anomaly.
I was then sent via flight-for-life to another hospital and underwent a 5-and-1/2-hour brain surgery to remove all of (what we came to know) a 6-centimeter (think egg-size) Grade IV Glioblastoma brain cancer tumor (whom I affectionately call "Gracie"). Yep, when I do things, I do them big.
That whoppin' glioblastoma was in my left frontal lobe and had amassed such a large field in my brain that when it shifted to the midline of my brain (or something along those lines), that's when I had a seizure (and also when a part of my right peripheral visual field was cut off).
The tumor was a honker and clearly explained everything I had been experiencing physically—up to that moment.
Turns out, this almost 39-year-old "healthy" chick, indeed, had a brain tumor.
The Hubs was absolutely right, damn it.
*Photo heads up! There are two pictures coming up that show my incision from my surgery. If that doesn't float well with you—please skip this part.*
If my last memory was puking, when did I wake up from my own abyss?
27+ hours later to be exact.
At that moment, I felt my eyeballs squinting as I noticed I was in an ICU bed and feeling what I like to call a "medical turban" wrapped around my gourd as medical professionals walk by in shock that I'm awake.
My head feels like a soft pillow.
Is this some kind of weird heaven, I ponder? God sure is hilarious if he has a hospital up in the sky.
Turns out, it was Earth. And my head felt so much better. Hence the medical turban.
As nurses, my neurosurgeon and anesthesiologist all did neuro checks on me to make sure I didn't spring a screw loose during surgery and I knew who I was...we all felt relief.
A palpable sigh was exhaled.
"We didn't think you were going to make it," remarked my anesthesiologist in a steady voice as he held my hand.
"My family and I have all been praying for you." My heart was touched.
That was when I literally felt the presence of something much larger than myself (God/Jesus/Source/Universe/Tea/Coffee) fill my spirit and that room.
I not only survived massive brain surgery and major tumor removal but, thank you, baby Jesus—I'm alive and I'm not incapacitated.
Call it what you want—I'll be so bold as to say that's a damn miracle!
"We told your husband to go home and get some rest—we didn't think you'd wake up so soon after surgery," the nurse gently relayed to me as she found my IV and pushed medication.
I had no idea the gravity of what had happened and what I was experiencing at that very moment.
When the Hubs called later he was more than elated to hear I was "Keli" again. No pain. No headache. He got his wife back, intact.
And after 6 days—I left that hospital—with my mind, body, and spirit fully alive—on my actual birthday: January 18th. I like to call that a Rebirth Day! Pretty cool, eh?
"The good news is I was able to remove all of your tumor. The bad news is these things like to come back again, but we'll never give up hope, okay?" These were the words echoed by my miracle-handed Neurosurgeon, Dr. Ayer (who gives me faith in Western medicine).
Dr. Ayer never gave me a timeline. I never asked him for one either. I like living on a wing and a prayer, I suppose.
"It's not pretty; I wouldn't recommend Googling it," remarked Dr. Ayer.
I understood completely what he was talking about. Because I fucking Googled it.
Apparently what was crawling around in my brain was also crawling around in
Senator John McCain's brain.
I can sit here and tell you if you Google glioblastoma you'll likely find a 12-15 month survival rate and a 5% chance of living beyond 5 years—depending on the article you read. Cute, right?
The Standard of Care for glioblastoma—if you have youth on your side—is a 6-week, 5-day a week radiation regimen in addition to a daily pill dose of chemotherapy (Temodar).
The Temodar can also be used for up to 2 more years post-radiation. There are clinical trials and even vaccines that can help the immune system, but nothing is full-proof and glioblastoma is considered terminal—depending on who you ask.
As I've learned to never say "never" I chose to do radiation and chemotherapy—two things I "never" thought I'd have to think about in my life—for 6-weeks.
I ended my chemotherapy and radiation on March 28th and I say that's when the true healing began to take place.
Now, I don't regret that time, but I definitely wouldn't do it again.
I'll spare you all the gory chemotherapy and radiation details and side effects, but let's just say I'll pass on that experience in the future.
I have a newfound respect and admiration for anyone who's gone through these medical treatments (cancer, chemotherapy, and/or radiation) and what that takes to endure both mentally, physically, and spiritually.
Here's where things get even more interesting (well aside from having a massive tumor in my brain): each journey is unique and so is your choice(s) in the matter.
You do have a choice and you do have a voice—use them!
This field of cancer can be ripe for egos and those that believe in only one path to healing.
If you don't advocate for yourself; please have someone who will.
You can say "no" to a doctor or a nurse, or any medical professional for that matter.
Trust your gut.
You can ask a million questions until you're comfortable.
You can pump the brakes at any time.
My Hubs, my daughter, my family, my friends, my Soul Sisters, heck even strangers—they're all my rock. Every single one of them is an Earth Angel.
Get yourself an Earth Angel or two, or ten—they make life so much more rad.
When I ask matter-of-factly about my options if my sweet Gracie does come back, I was given the facts at the time.
I can prepare myself. I can speak with my Hubs and our daughter. We can make plans that feel comfortable to us. That has helped me feel like I'm in somewhat control of this windy, foggy road I'm on.
I've learned so much about the brain, cancer, tumors, myself, and options.
Options that may explain why I even had a glioblastoma to begin with and what other treatments—aside from the Standard of Care—I can do to nurture my soul, allow my spirit to sing, and feel vibrant health.
It's all very possible and I'm living proof that it is.
Sure, I can be pissed that I was diagnosed with a grade IV glioblastoma (the highest grade for brain cancer and the grimmest).
But those moments are few and far between.
I could ask myself "why me?" or I could ask myself "why NOT me?". I'm no more special than the next person and I intend to use this experience to help others going through a hard time; a tough diagnosis; hell, a crappy moment, or even a not-so-fun day.
The way I like to take this new experience looks like this: grateful as all hell.
Grateful for the prayers. Oh, the holy prayers.
Grateful for the people who've given their time, resources, and heart to me and my family (GoFundMe, Benefit Brunch, Meal Train, calls, texts, voicemails, and their sheer presence).
Grateful I have another day to live and breathe.
Grateful I have my memory.
Grateful I can hug and kiss my Hubs and daughter.
Grateful I can have coffee and go on vacation with my Soul Sisters.
Grateful I can laugh and dance a jig.
Grateful I can still write.
Just. Grateful. Grateful. Grateful.
That gratitude...it's a feeling and a choice.
When they say it takes a village...it takes a fucking village.
From the moment I "went down" as I call it—to this very second, I've had nothing but the best, most supportive healing tribe this gal could ever ask for.
A major shout-out to my Hubs and spirited daughter. You both have made this season of my life worth walking through together. No words can ever express my full gratitude for your presence in my life. Only loads of hugs and kisses every day of our lives together and beyond.
Here are some resources I've found super helpful along the way—
• My man God (insert name that feels best to you)
I told a client that I literally feel like God is next to me in everything that I do. It feels so damn good. I've never felt this close to God in my life and I don't ever want to not feel this feeling.
I started learning more about balance and "taming the stallion" as Dr. Joe puts it, in regard to stress.
His book Becoming Supernatural has been a massive eye opener for me along with his meditations. This man is deep and I love it!
I'll say his work has been nothing short of life-changing for me during this season of my life. My dream is to one day go to one of his retreats! And so it is.
• Working with a
Naturopath/Dr. Marchon
It's fascinating to hear other practitioners speak about cancer. They have such a unique take on it. I've heard a lot about balance and stuck energy since Gracie happened.
I've been working on massive gut issues that I've had my entire life (thanks, trauma) and doing a lot of forgiveness work. Mind, body, and soul stuff happening right here, folks.
• Talk therapy with my therapist
I'm a massive advocate for therapy. I literally tell everyone I know about my therapist (and always have) and give them her information if they feel like they need that extra help in life.
My therapist has walked me through some of the darkest days and I'm forever grateful for her support.
• My Chiropractor, Dr. Justin Youngren
Ever met a good old common sense cowboy who just gets life? That's Dr. Youngren. My whole family's gone to him for years and we're better for it. Not just physically, but this guy speaks to the soul. Find yourself one of those kinds, okay?
Books
• The Body Keeps the Score by Bessel Van Der Kolk, MD
• Radical Remission: Surviving Cancer Against All Odds by Kelly A. Turner, Ph.D
• The Cancer Revolution by Leigh Erin Connealy, MD
• Breath by James Nestor
• Women Who Run With The Wolves by Clarissa Pinkola Estes, Ph.D
Podcast
• The Heal Squad with Maria Menounos
ï»ż
If you're wondering how I am today...I feel pretty damn fabulous. I always say I'm "livin' the dream" and I truly do feel like I'm doing just that these days.
If I'm being completely honest, I feel better now than I did before I went down. And I thought I was healthy as all hell before Gracie decided to say "what's up, girl?".
Right before I experienced this brain tumor I vividly recall lamenting to my therapist, "I feel like I have trauma stuck in my cells!" as I felt my arms.
I feel none of that now.
At times I literally feel like that big-ass tumor was all the trauma I've experienced in my life and it was plucked from my brain in that five-and-a-half-hour surgery.
When I woke up in ICU I felt a sense of relief; a lightness I hadn't felt in my entire life.
Perhaps the past trauma I had experienced was no longer living in my cells anymore.
We truly don't know how long we have on this Earth—even when you look death straight in the face.
As crazy as this rollercoaster has been, I wouldn't change it for the world.
I wake up with a smile on my face because I'm alive and not looking down from pillowy clouds.
I pray you don't need a life-or-death situation to know how amazing this life can be and truly is.
So, to channel The Vic (my tits up Pops) go worry less, live more, and hug your people!
This story isn't over yet...
Love + Grateful AF for Gracie,
Keli
*Disclaimer: I am absolutely no Medical Doctor, Naturopath, Meditation Guru, or Life Coach. I'm simply an Italian chick slinging a profound story she continues to experience through every cell of her body. Take what resonates and leave what doesn't.*
© 2011-2023 KELI CONCI | Privacy Policy | Keep Showin' Up!